Deutsches Referenzzentrum für Ethik in den Biowissenschaften (DRZE)

Titel: Rethinking Informed Consent: The limits of autonomy

Termin: 12.6.2006, 12:00 Uhr, bis 13.6.2006, 20:00 Uhr

Veranstaltungsort:
Seglarhotellet
130 39 Sandham
Sweden

Referenten: Keynote speakers: Klaus Hoeyer (MA, Ph.D., Assistant Professor, Institute of Public Health, University of Copenhagen, Denmark) *** Ann Sommerville (MA, Head of the Medical Ethics Department, British Medical Association and Visiting Professor in Medical Ethics, Queen Mary College, London, United Kingdom) *** Anne Catherine Staff (Consultant, MD, PhD, Department of Gynecology and Obstetrics, Ullevål University Hospital, Oslo, Norway) *** Simon N. Whitney (MD, JD, Department of Family and Community Medicine, Baylor College of Medicine, Houston, Texas, USA)

Weitere Informationen:
http://www.bioethics.uu.se/symposium/2006/

Kurzbeschreibung: Although of central importance to clinical practice and biomedical research, rules of informed consent have for quite some time been criticized for being too formalistic, being insensitive to the various conditions in which they are applied, setting too strict requirements when risks are small, and underestimating difficulties in communicating information. Moreover, the emphasis put on informed consent reveals how autonomy has increasingly been considered the most important ethical principle at the possible expense of other values and principles.

The symposium Rethinking Informed Consent: The limits of autonomy invites scientists and scholars from both philosophy and clinical/research settings to address these issues in order to identify the limits of informed consent in protecting the diversity of interests of patients and research subjects. More specifically, the symposium aims to:

1. critically examine the ‘standard view’ of informed consent in health care and biomedical research, in terms of both its philosophical underpinnings and the practical difficulties encountered in applying it in real-life situations, and to

2. develop well-argued positions on alternative forms of information and consent procedures, or alternatives to informed consent, for situations where the standard form seems less than adequate.

The symposium particularly focuses on the role given to autonomy in the standard view. It ponders whether informed consent as applied gives sufficient room for all interests and values involved in health care and biomedical research.

Some of the main questions we wish to address are:

* How should information and consent/assent be handled in non-standard cases?

* Is the ethical principle of respect for autonomy the ‘foremost among equals’?

* Is respect for autonomy the best means to protect patients’ interests?

* Should altruism and a duty to participate in research be stressed more prominently?

* Does respect for autonomy necessarily entail non-directiveness in counselling?

* To what extent is some form of paternalism acceptable?

* What role does informed consent actually have in healthcare & research?

Kontakt: Mrs Josephine Fernow
Uppsala University
Karolinska Institutet
Centre for Bioethics
Department of Public Health and Caring Sciences
Uppsala Science Park
751 85 Uppsala
Sweden
Tel.: +46 - 18 - 6 11 22 96
Fax: +46 - 18 - 50 64 04
josepine.fernow@bioethics.uu.se; bioethics@bioethics.uu.se
http://www.bioethics.uu.se/

Veranstalter: Centre for Bioethics at Karolinska Institutet & Uppsala University in collaboration with: Nordic Committee on Bioethics and Journal of the Swedish Medical Association (Läkartidningen)

Schlagworte: Gesundheitswesen

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