Titel: Understanding biomedicine. Listening to disabled people.

Beginn: 1.2.2008, 10:00 -18:30 Uhr

Veranstaltungsort:
Auditorium Hôtel de Ville
3, rue Lobau 7004
Paris / France

Referenten: Dr. Katrin Grüber (IMEW, Berlin) *** Jean-Luc Simon (DPI Europe Chair, Paris) *** Dr. Claudia Neubauer (Fondation Sciences Citoyennes, Paris) *** Prof. John Burn (University of Newcastle, UK) *** Dr. Tom Shakespeare (PEALS, Newcastle, UK) *** Prof. Bernard Bussel (Hôpital Raymond Poincaré, Paris) *** Dr. Patrick Pellerin (Représentant l′APF, membre du Conseil d′Orientation de l′Agence de la Biomédecine) *** Javier Romañach Cabrero (Independent Living Forum, Spain) *** Dr. Alain Simon (APHP, Paris) *** Dr. Tom Shakespeare (PEALS, Newcastle, UK) *** Paola Maiello (Lawyer and Chairperson of the Spina Bifida Association, Italia) *** Prof. John Burn (University of Newcastle, UK) *** Dr. Bill Albert (DPI Europe, Former Chair of Bioethics Committee of dpi, Norwich, UK)

Weitere Informationen:
http://www.imew.de/imew.php/cat/44/aid/296/title/Understanding_biomedi ...

Kurzbeschreibung: The possibilities, risks, consequences, desirability and legitimating of biomedicine are widely discussed in science and in public. The debate however has suffered because the perspective of people living with impairment is partly ignored or not taken seriously. Despite the fact that medical-technical developments in many fields improved the life of people with a disability they are rarely included as partners in designing research projects. There may be different reasons for it. One may be that disabled people may not have the information or the knowledge; others may be that researchers have not the same priorities as disabled people on research issues. There may be other factors that we will try to identify during this seminar.

The aim of the session is to inform members of civil society organisations working on disability issues about planned developments in medicine that might be relevant for them so they play in the future a more active role in decision making.

The Workshop is part of a project in the frame of the 6th EU-framework, Specific programme "Structuring the ERA, Work Programme Science and Society" (FP6-2005-Science-and-Society-19-044597). The main purpose of STACS (Science technologies and civil society - Civil Society Organisations, actors in the European system of research and innovation) is to provide opportunities for scientists and civil society organisation to design and do common research projects.

On the 2nd of February there will be another workshop on the same venue: Doing research together. Different ways to identify human potentials and needs.

The conference will be in English and French and bilingual participants will make the conference understandable for all participants.

Kontakt: Frau Dr. Katrin Grüber
Institut Mensch, Ethik und Wissenschaft gGmbH (IMEW)
Warschauer Straße 58 A
10243 Berlin
Tel.: +49 - (0)30 - 29 38 17 70
Fax: +49 - (0)30 - 29 38 17 80
grueber@imew.de
http://www.imew.de/

Veranstalter: Institut Mensch, Ethik und Wissenschaft gGmbH (IMEW), Disabled Peoples International

Wissenschaftliche Leitung: Dr. Katrin Grüber (IMEW, Berlin), Jean-Luc Simon (DPI, Europe)

Schlagworte: Behinderung, Krankheit