Titel: Next Generation Medicine? Ethical, Legal, and Technological Questions of Genomic High-throughput Sequencing in the Clinic

Termin: 14.11.2016 bis 15.11.2016

Veranstaltungsort:
University Medical Center Goettingen
Lecture Hall MED 25
Von-Siebold-Straße 3
37075 Goettingen

Referenten: Among the invited speakers are Benedikt Brors (Deutsches Krebsforschungszentrum Heidelberg), Martin Langanke (Greifswald University), Christian Lenk (Ulm University), Matthieu Schapranow (Potsdam University), and Christoph Schickhardt (Heidelberg University)

Kurzbeschreibung: Due to increasingly effective technological platforms, sequencing of the human genome is now possible within hours and for less than 1000 Euro. This development has sparked growing interest among clinicians and molecular biologists. Genomic high throughput technologies are frequently hailed as a revolutionary tool that will radically change clinical practice and establish “predictive”, “individualized” or “precision” medicine. The aim is to target rare, clinically unrecognizable diseases or to subtype clinically indistinguishable disorders with a suspected genetic background, e.g., in the oncological context. More and more doctors, patients, and stakeholders are becoming aware of the possibilities of biomarker-based high-throughput analyses. At the same time, the clinical implementation of the rapid technological advances in the field of genomic high throughput sequencing is accompanied by practical difficulties and uncertainties. The interpretation and reporting of genomic findings in clinical practice, e.g., in molecular tumor boards, becomes more complicated. The increasing volume of huge and highly complex data sets also poses problems regarding sustainable infrastructures for management, integration and exploration of genomic sequencing data with other clinical data. And finally, the large pool of sensitive and ambiguous data raises ethical, legal, and social questions that are still in need of clarification, especially regarding informed consent, disclosure policies, and data protection.

The workshop brings together experts from the fields of medicine, ethics, social sciences, law, and biomedical informatics. The aim is an interdisciplinary discussion of the challenges posed by clinical applications of genomic high throughput sequencing.

Kontakt: Prof. Dr. Ulrich Sax
Universitätsmedizin Göttingen
Medizinische Informatik
Robert-Koch-Str. 40
37075 Göttingen
Tel.: 0551-39-172504
ulrich.sax@med.uni-goettingen.de
http://www.genoperspektiv.de/

Veranstalter: GenoPerspektiv Consortium,

Wissenschaftliche Leitung: Ulrich Sax, PhD, Nadine Umbach, PhD (Department for Medical Informatics, University Medical Center Goettingen)

Schlagworte: Forschungsethik, Forschungsrecht, Genforschung/-technik, Medizinische Ethik