Titel: Interuniversity Course on Clinical and Research Genomic Data Sharing and Access

Termin: 31.8.2017, 9:00 Uhr, bis 1.9.2017, 17:00 Uhr

Veranstaltungsort:
UZ Leuven campus Gasthuisberg
Herestraat 49
3000 Leuven
Belgium

Referenten: Susan E. Wallace, PhD ( University of Leicester, UK) *** Ales Maver, MD (Ljubljana University Medical Centre, Slovenia) *** Manuel Corpas, PhD (Scientific Lead at Repositive, UK) *** Julia Foreman, PhD ( DECIPHER Project manager, Wellcome Trust Sanger Institute) *** Dylan Spalding, PhD (Project/Technical Lead for EGA) *** Prof. Joris Vermeesch (University of Leuven, Belgium) *** Mark Taylor, PhD ( University of Sheffield, UK) *** Christoph Schickhardt, PhD (University of Heidelberg, Germany) *** Stephanie Suhr, PhD (former BiomedBridges and ELIXIR project manager) *** Ivo Gut, PhD (Director of CNAG) *** Mahsa Shabani, PhD (University of Leuven, Belgium) *** Annet Wauters, MA (University of Leuven, Belgium)

Weitere Informationen:
https://gbiomed.kuleuven.be/english/research/50000687/50000697/datasha ...

Kurzbeschreibung: In order to make the promises of genomic medicine a reality, various national and international organizations have endorsed responsible genomic data sharing in both clinical and research settings. Sharing individual-level genomic data however could generate various concerns. Individual-level genomic data contains sensitive personal information which are worthy of robust privacy protection. Additionally, further processing of data, originally accumulated for a single project, gives a new twist to the discussion on the adequacy of informed consent mechanism. In order to ensure responsible data sharing, it is crucial to discuss the challenges and promises associated with genomic data sharing with clinicians and the researchers in the field.

To address this goal, on August 31st and September 1st 2017, Leuven Institute for Human Genomics and Society will be organizing the interuniversity course on clinical and research genomic data sharing, which aims to discuss the current state of the art in clinical and research genomic data sharing and address the associated ethical, legal and social challenges.

The interuniversity course will be a combination of lectures and interactive discussions.

Kontakt: Centre for Biomedical Ethics and Law
Kapucijnenvoer 35 Box 7001
3000 Leuven
Belgium
Tel.: +32 16 37 33 68
Fax: + 32 16 33 69 52
myriam.swartenbroeckx@kuleuven.be
http://gbiomed.kuleuven.be/english