Deutsches Referenzzentrum für Ethik in den Biowissenschaften (DRZE)

Titel: What about the Family? An interdisciplinary course on ethical issues in health care, with a special emphasis on genetics

Termin: 13.8.2018, 9:00 Uhr, bis 17.8.2018, 16:00 Uhr

Veranstaltungsort:
University of Groningen, The Netherlands

Referenten: Marian Verkerk, PhD (University of Groningen / University Medical Center Groningen, The Netherlands) *** Dr Ainsley Newson (University of Sydney, Australia) *** Christian Munthe (University of Gothenburg, Sweden) *** Jackie Leach Scully (Newcastle University, UK) *** Veerle Provoost (Bioethics Institute Ghent, Switzerland) *** Kristin Zeiler (Linköping University, Sweden)

Weitere Informationen:
https://www.rug.nl/education/summer-winter-schools/summer_schools_2018 ...

Kurzbeschreibung: Recent developments in healthcare and social care policy are challenging the scope of and theoretical justification for claims based on notions of family responsibility. The considerations cover a wide range, from normative issues of (for example) the basis on which we should expect responsibility to be present, to empirical considerations of how responsibilities come to exist and are enacted in a range of familial situations.

This summer school will explore various theoretical and practical approaches that can be used to address challenges arising from new forms of healthcare practice. In particular, we will examine the significance of people’s key relationships (such as with family and community), and how people deliberate and decide about their responsibilities.

As a special field of interest, issues arising from the use of genetic and genomic technologies has been chosen. Family is inherent to the field of genetics, because information can often only be meaningful when considered in the context of a family. But genetics itself can lead to new forms of kinship and dependencies.

Research questions and themes to be addressed include:

- what ‘family’ means;
- negotiating responsibilities;
- familial roles in decision making;
- justice within families.

Participants will enhance their knowledge and understanding of the theoretical approaches to ethics of families, and their applications, especially on the field of genetics, screening and decision-making. Participants will have ample opportunities to present their own research and benefit from feedback from internationally renowned scholars.

This summerschool will be organiszed for the second time and can be seen as the outcome of an international collaboration between several internationally renowned scholars, subsidized for by a network grant of NWO during the period of 2014-2017. See for more information about this network see also http://www.familyethics.net/ .

Kontakt: familyethics@rug.nl
http://www.familyethics.net/

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